Cricket legend Steve Waugh prepares to cycle from Sydney to Byron Bay as part of the Steve Waugh Foundation's Captain's Ride to raise money and awareness about rare diseases. Photo Contributed
Cricket legend Steve Waugh prepares to cycle from Sydney to Byron Bay as part of the Steve Waugh Foundation's Captain's Ride to raise money and awareness about rare diseases. Photo Contributed Contributed

Waugh rides from Sydney to Byron for rare diseases

MUSCLES ablaze and a mind beset by doubt, Steve Waugh will muster the memory of two young faces and press on.

The cricket legend is embarking on one of the greatest challenges of his life: a 920km bicycle ride taking him from Sydney and through Grafton to the finish line in Byron Bay.

He knows there will be exhausted moments when he will think he cannot go on.

But it is nothing compared to the daily battles of the kids he is riding for - Bradley and Thomas Farrell.

The teenage brothers were the only two people in the world with Arts Syndrome when a common cold led to pneumonia and took both their lives this year.

They spent their short time on earth confined to wheelchairs, deaf and virtually blind.

And they had a big impact on Waugh.

"I know, on those really big hills, going up the mountains, when I'm struggling, I'll be thinking what would Bradley and Thomas do?" he said.

"They wouldn't give up."

Waugh's Captain's Ride will set off from the NSW capital on Sunday before coming to an end in Byron Bay on Friday.

Organised by the Steve Waugh Foundation, the adventure aims to raise awareness of children such as Bradley and Thomas whose lives have been touched by rare diseases.

The charity has raised more than $10 million since its inception in 2005 and helped families dealing with more than 300 little-known disorders.

Waugh said the ride would be the most challenging fundraising effort he has undertaken.

He is taking a few friends along with him.

Big names like neurosurgeon Dr Charlie Teo, cyclist Simon Gerrans, motorcycle champion Mick Doohan and former test cricketer Gavin Robertson will join a cast of 65 "captains of industry" testing their mettle on the ride.

Paralympian John Maclean - the first wheelchair athlete to swim the English Channel - will join the team for the final stage from Grafton to Byron.

After undergoing innovative Ware K Tremor therapy, he has regained some of the use of his legs and will ride a conventional bicycle on the 180km journey.

"It's going to be a huge undertaking for me," he said.

"To have mates like Steve along the way to give me a bit of encouragement, it's going to be a great challenge."

Waugh first started "seriously" riding just four months ago in preparation for the six-day fundraiser.

But he said John Maclean's story was truly inspiring.

"John plays it down but he will be the motivation for us on the last day," Waugh said.

"To put it in perspective, before training for this event, the most John's ever cycled was 30km.

"We did training a few weeks ago and John managed to punch out 100km the first time.

"Then he said, 'I may as well do the long stretch. Make it 180km'.

"John knows more than most how to overcome a challenge."

Cricket legend Steve Waugh and paralympian John Maclean prepare to cycle from Sydney to Byron Bay as part of the Steve Waugh Foundation's Captain's Ride to raise money and awareness about rare diseases. Photo Chris Calcino
Cricket legend Steve Waugh and paralympian John Maclean prepare to cycle from Sydney to Byron Bay as part of the Steve Waugh Foundation's Captain's Ride to raise money and awareness about rare diseases. Photo Chris Calcino Chris Calcino

The motivation is clear: to raise awareness about rare diseases and the bravery of the kids who live with them.

"I wanted an event that in some way replicated what our (foundation's) kids go through each and every day," Waugh said.

"I wanted to find out their attitudes to life.

"They never give up, they never complain. They get on with life.

"And personally I'm going to rely on a lot of the kids I've known and met through the foundation.

"I'll use that inspiration to get me through."

The threat of well-meaning retribution will also be in the back of his mind.

"We're going to be bagging each other to get each other through," he said.

"No one's going to want to pull out because they know they're going to cop it for the next 10 years.

"It's all part of the ride."

The riders will arrive in Grafton on Thursday before reaching Byron Bay on Friday.

Visit http://www.captainsride.com.au to donate or follow the journey. 



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