Artemissia, with her mother Kelly, is fighting back from a rare disease.
Artemissia, with her mother Kelly, is fighting back from a rare disease.

Help girl who suffers rare illness

NORTHERN Rivers residents are asked to help raise funds on Australia Day for a family struggling to help their young daughter fight her way back from a rare, and usually fatal, illness.

Two-year-old Burringbar child Artemissia (surname withheld) is the only known sufferer of Sandhoff disease in Australia and was originally expected to die from the illness.

However, new treatments have all but halted the illness and she is now slowly fighting her way back.

The Burringbar community will use Tweed Shire Council’s Australia Day celebrations, which are being held in the village this year, to raise funds for Artemissia.

Among the activities at the family-friendly day will be a multi-age sports competition, market stalls, a Rural Fire Service demonstration, a jumping castle, sack races, and sumo suit wrestling.

Follow Artemissia’s progress at: www.livingwithleukodystrophy.blogspot.com



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