Jayden Driussi, 13, is the second-oldest person alive in Australia with the rare dietary disorder Tyrosinemia.
Jayden Driussi, 13, is the second-oldest person alive in Australia with the rare dietary disorder Tyrosinemia.

OPINION: Kudos to Hogan for saving Jayden Driussi

PAGE MP Kevin Hogan deserves serious kudos for stepping in to save Bexhill resident Jayden Driussi and about 900 other kids with his rare dietary disorder.

It's the sort of thing local members are elected for, but in this case 13-year-old Jayden isn't even one of Mr Hogan's constituents.

Bexhill sits just inside the boundary of the Federal seat of Richmond, which means Mr Hogan would have been well within his rights to leave the whole issue to his neighbouring MP, Justine Elliot, to fix.

Instead he sought out Federal Health Minister Sussan Ley to discuss Federal Government plans to remove a subsidy that allows the families of children with the tyrosinemia dietary disorder to buy the food that keeps them alive.

It is, granted, something that might be easier for Mr Hogan than Ms Elliot, given her party is in opposition and his is in government.

In a recent Your Story submission on The Northern Star's website, Jayden's mum, Shanna, said her son, at the tender age of 13, was now the second-oldest living Australian with the condition, which severely limits the range of foods their bodies can handle.

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That meant an early death for children born with the condition until a Government subsidy made specialised foods for them financially accessible.

At $14.95 for a 375 gram box of cereal and $10 for a small loaf of bread, it's not hard to see the need.

The Commonwealth has yet to confirm it will maintain the subsidy, so Jayden and the 900 other kids with tyrosinemia aren't safe yet.

However, Mr Hogan said his talks with Ms Ley went well, so there is good reason to hope.

And it's all because Mr Hogan read Jayden's story in the paper and decided something had to be done.



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