Jayden Driussi, 13, is the second-oldest person alive in Australia with the rare dietary disorder Tyrosinemia.
Jayden Driussi, 13, is the second-oldest person alive in Australia with the rare dietary disorder Tyrosinemia.

OPINION: This funding keeps kids alive - it must not be cut

IMAGINE a day where you cannot eat meat, fish, any dairy products, nuts, seeds, legumes and most other processed packaged foods including bread, pasta, cereal and flour.

That's a line from a submission we received via the Your Story tab on The Northern Star's website.

It details the trials and tribulations of Jayden Driussi, who at 13, is the second-oldest Australian alive with the rare dietary condition called Tyrosinemia.

YOUR STORY: Government to cut program that keeps Jayden alive

Without a very regimented low protein diet and proper management, tyrosine and its by-products build up in tissues and organs and there are serious health impacts.

Without the correct diagnosis and management of his condition, Jayden wouldn't still be alive today.

He has to eat special medical foods that are extremely expensive to buy. A loaf of bread costs $10.

The Federal Government has assisted families like Jayden's with a monthly food grant to help cover the costs, but that is due to cease at the end of this year.

That really puts the average weekly grocery bills beyond most families.

And it seems, at least on the surface, a silly thing to cut just to save a few bucks.

There are always very real impacts of cutting government services and subsidies.

Making a decision in Canberra and putting a signature on a bit of paper actually influences lives.

And here is a very public example of a program that is doing good in the community potentially being axed.

Jayden is the face of that. An otherwise healthy and happy kid who needs a helping hand to get through life is being put at jeopardy.



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