Disability insurance welcomed
LIFE is often a battle for Ballina's Gordon and Kelly Cox.
Kelly suffers from muscular dystrophy, while Gordon has a spinal cord injury after a motorbike accident four years ago.
They are faced with many expenses for medications, wheelchairs, modifications to their home and much more.
At the same time, they are raising a seven-year-old son.
The financial pressures put them “between a rock and a hard place”, Mr Cox said.
But the National Disability Insurance Scheme could make a huge difference.
The scheme would transform funding and service delivery for people with a disability, their families and carers.
“It'd make life so much easier for us, especially because we're on pensions,” Mrs Cox said.
“I am just going to need more and more medication.
“I don't want it to get to the point where we have to say, well, I can have the medication or our son can play sport.”
Mr Cox said the NDIS would be a “godsend” for their family.
And they are not alone.
Yesterday, at Alstonville's House With No Steps, a DisabiliTEA event was held to raise awareness of the scheme.
As Casey Saban talked about her eight-year-old son Riley, she fought to hold back tears.
When he was born he couldn't breathe on his own for more than an hour and now has a condition called spastic quadriplegia cerebral palsy.
Ms Saban said her little boy was a “true champion”.
“His smile lights up a room; his laugh is contagious,” she said.
“But the system is failing us.
“In a perfect world, I would not have to fight for my child's unmet needs.
“I can't sit back and watch it (the inaction) any longer.”
Disability support services across the country are rallying to get the Federal Government to sign off on the scheme.
“We want support for families to become a right instead of a fight,” HWNS general manger, Brett Lacey, said.
“This campaign is very much about changing that.”