Bid to get the best for Gemika
GEMMA TONGA is a young Goonellabah mum on a mission to get the best possible treatment for her four-year-old daughter, Gemika.
Gemika has Cornelia de Lange Syndrome (CdLS), an intellectual and physical development genetic disorder, meaning she may never play with dolls, nor run very fast like many children of her age.
The young mother is hosting an informative luncheon at the Lismore Workers Club on Friday, May 28, to raise money to take Gemika to Dallas, Texas, next month.
“She will receive free head-to-toe consultations with CdLS specialists and we’ll attend informative workshops learning about promising research into the disorder,” she said.
“Gemika has a small upturned nose and her eyebrows are going to join each other. She is deaf in one ear, has epilepsy and a mild form of autism.
“Raising Gemika has been one of the greatest challenges Sione (husband) and I have ever faced, but she is so beautiful. We just want the best for her.”
CdLS Association (Australia) Family Referrals NSW co-ordinator Jenny Rollo said the disorder affected one in 10,000 to 30,000.
The luncheon, from midday to 1.30pm on May 28, will include the screening of an informative DVD. Inquiries can be directed to Gemma on 0411 269 321.