THREE-YEAR-OLD Burringbar girl Artemissia Ryan has lost her battle of more than two years against a rare debilitating disease which had left her bed-ridden.
Artemissia, who was brought home to be cared for around the clock by her parents and grandmother just before Christmas two years ago, passed away on Monday afternoon.
Her distraught father, Alex Alexiou, who just two weeks ago was elated after the Murwillumbah district community and local businesses pulled together to renovate their small home to make it easier to care for Artemissia, said yesterday she died just after 3pm Monday.
“We are waiting for arrangements to be put in place. I’m not sure when,” he said of his daughter’s funeral.
“We are hoping to do something at the Anglican Church in Murwillumbah and to put her to rest at the botanical gardens (Tweed Valley Cemetery at Eviron).”
In the first week of December, Murwillumbah’s three Rotary clubs and local businesses banded together to help make the final days of Artemissia’s life more comfortable by renovating her parents’ home while giving the family a holiday at Hastings Point.
Artemissia had barely turned one when she was struck by the rare gen-etic disorder Sandhoff disease that began destroying her brain.